World Hemophilia Day is celebrated internationally every year on 17th April to raise public awareness about hemophilia a genetic blood disorder. Hemophilia is the bleeding disorder in which the ability of blood to clot gets drastically reduced causing the patient to bleed severely even in minor injuries. As per the statistics prepared by World Federation of Hemophilia (WFH), almost 1 in every 1000 persons is suffering from hemophilia and 80% of them are left untreated.
Ten Lines on World Hemophilia Day
1) World Hemophilia Day is celebrated on 17th April every year to raise awareness about the hemophilia, a bleeding disorder.
2) World Hemophilia Day is a global health awareness program aimed at diagnosis and treatment of the inherited bleeding disorder.
3) It is observed internationally to honor the birth anniversary of the founder of the World Federation of Haemophilia, Frank Schnabel.
4) Every year, government, NGOs and civil communities jointly hold awareness programme on bleeding disorders on the occasion of World Hemophilia Day.
5) Around 4.4 million people worldwide are suffering from hemophilia.
6) Hemophilia refers to the condition of prolonged bleeding when the blood inside the body does not clot normally.
7) 75% of people suffering from hemophilia around the world don’t receive proper care due to a lack of awareness about the disorder.
8) Every year World Hemophilia Day is celebrated with the theme to highlight the harmful effects of genetic bleeding disorders globally.
9) World Hemophilia Day 2019 theme is “Reaching Out – The First Step to Care”.
10) Nations around the globe organize various events like health check-up campaigns, discussions, seminars, etc to celebrate World Hemophilia Day.
1) World Hemophilia Day was first observed in 1989 by WFH (World Federation of Hemophilia) - an organization that has 113 member nations.
2) World Hemophilia Day helps to promote outreach and identification which is the first step for the diagnosis and effective treatment of hemophilia.
3) The celebration outreach initiatives include conducting workshops at the regional level, awareness programme through health professionals.
4) It motivates people for volunteering and collecting funds for the treatment of a patient suffering from hemophilia.
5) On World Hemophilia Day, health sessions are organized in order to educate medical professionals about their roles and responsibilities in handling bleeding disorders.
6) The celebration stresses the importance of local and national health administration in the identification and treatment of the inherited bleeding disorder.
7) World Federation of Hemophilia has launched a Humanitarian Aid Program to provide integrated training to locally to treat the bleeding disorder.
8) Various posters along with fact sheets about hemophilia are distributed in schools, education institutes, and civil communities on World Hemophilia Day.
9) Many events like awareness walk, question and answer session, presentation session with health experts mainly doctors are organized on World Hemophilia Day.
10) The school students, teachers, health experts, and the general public participate in the event being organized at various places in the country to celebrate World Hemophilia Day.
World Hemophilia Day is one of the famous health events celebrated at the international level every year in order to promote the early diagnosis of hemophilia, an inherited bleeding disorder. There are millions of people who are suffering from hemophilia around the world who receive poor treatment or no treatment at all due to a lack of awareness and proper guidance. The government, civil communities, and NGOs should work in collaboration in order to raise awareness about bleeding disorders so that timely treatment can be arranged for the people who are suffering from it.